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Sangha World starts its Rehabilitationist Program:
Our first project was started in late 2005 on the
tsunami affected islands of Andaman and Nicobar of
India. The disabled population lacks access to
education, enterprise, and community. There are no
trained teachers or therapists. Sangha developed an
initiative to begin training trainers in the field of
rehabilitation. In July 2006, an 11 member group with 9
specialists visited Port Blair to begin a 10 day
multidisciplinary training program and to make a needs
assessment of the local resources and disabilities. This
talented group included:
1. Dr. Jose Rafols, Occupational Therapy, Florida
International University
2. Dr. Paula Madrid, Trauma Psychology, Columbia
University
3. Penny Peacock, Hearing Aid Specialist and
Audiologist, HEARUSA
4. Hassan Akmal, Public Health, Columbia University
5. Raji Doraiswamy, Physical Therapy
6. Valarie Moser, Teacher of Visually Impaired,
Orientation and Mobility, Lighthouse of Broward
7. Dr. Gaelynn Wolf Bordonaro, Art Therapy, Emporia
University
8. Alexandra Leal, Documentary videographer
9. Dr. Hina Sharma, Internal Medicine and Pediatrics,
Sangha, Inpatient Clinical Solutions
The training was extremely successful and was
continuously attended by 200 interested people over the
10 day course. Mornings were a 3 hour block of lectures
given by our panel and the afternoons were
multidisciplinary assessments where the parents and
child rotated through Pediatrics, Hearing evaluation,
Vision Evaluation, Psychology Evaluation, Art Therapy
Session and Evaluation, Occupational Therapy Evaluation
and Physical Therapy Evaluation. Six hearing impaired
children were fitted with hearing aids, six children
were given and trained to use wheelchairs, all visually
impaired children were trained and given walking sticks
and over 250 children were thoroughly assessed. These
children came from all the surrounding areas of Port
Blair and a significant group of 50 children were
brought from Little Andaman by ActionAid to be evaluated
by our team.
After the initial training, a consensus was reached
that:
1. There are no local resources for disabled children
2. There is very poor documentation of existing
disabled population
3. Lack of teachers both for ‘normal’ and special
needs children after the tsunami
4. Limited local access to medical care
5. Significant social stigma against disabled
population
6. No vocational track for disabled population
7. Poor preventive and primary health care
It has been shown that community stakeholders can be
taught basic skills in physical therapy (PT) and
occupational therapy (OT) and can significantly impact
activities of daily living (ADLs) which are bathing,
dressing, feeding, toileting, and transfers, as well as,
independent activities of daily living (IADLs) which are
using telephone, housekeeping, transportation, managing
money, shopping, food preparation, laundry, and managing
medications. These are important parameters that can be
measured pre and post training to evaluate a program’s
effectiveness.
Our goal was solidified into a culturally adapted
curriculum which would include PT and OT, but would also
encompass Speech Therapy (ST), Teacher of Visually
Impaired, Teacher of Hearing Impaired, Nursing, and
Public Health. Just as importantly, in this community
traumatized by the tsunami, as well as disability, we
would include Psychology and Art Therapy
Telemedicine and Sangha's Rehabilitationist Program:
Telemedicine is an emerging concept both for
developing and developed countries. Florida
International University (FIU), our lead University, is
at the forefront of telemedicine and is also a member of
the Internet2 consortium. Telemedicine would allow the
students being trained in the Andamans to receive an
international education remotely.
FIU also developed the concept of a Rehabilitationist
curriculum which would include all of the areas
discussed above, PT, OT, ST, Nursing, Public Health,
Teacher of Visually Impaired, Teacher of Hearing
Impaired, Art Therapy, and Psychology.
This curriculum would involve transmission of stored
information but would necessitate real time reciprocal
broad band transmission to teach the active lessons,
demonstrate live sessions with patients and critique
student techniques live with patients. This live concept
is integral to the training and is the key component
which would make it as successful as live classroom
training.
Physical Therapy Training Session #2 and Dr. Ronnie
Leavitt:
Dr. Ronnie Leavitt, Physical Therapy from the
University of Connecticut conducted our second training
session over 7 days in Port Blair.
This program allowed us to obtain even more
information. Once again, there were lecture series in
the morning but this time assessments were made in the
homes of the disabled children. Dr. Leavitt traveled to
300 children’s homes over the 7 days and was able to not
only assess the children and their physical environment,
but their family and social support as well. She also
taught the families to make rudimentary adaptive
equipment from the materials around them.
Sangha selects its first class for our Rehabilitaionist
Program:
We also selected our first class of 25
Rehabililtationist students from 80 applications. It was
an extremely competitive selection and all the
applicants were profoundly affected by the need for
trained Rehabilitaionists for the disabled population on
the Andaman and Nicobar Islands and were deeply
enthusiastic. Sangha will continue its on site training
sessions (Art Therapy will rotate through in June, OT in
July) and will begin transmission of its stored
curriculum. The current class of 25 rehabilitationist
students has begun collecting baseline data on the
number and type of disabilities. The geographic areas
and communities were divided and each student had an
assigned zone for which they would collect data, perform
health surveys and would then treat the disabled
children and adults as they receive training from the
Rehabilitationist teachers. They have assessed 800
disabled persons so far in and around the municipality
of Port Blair. We are also measuring baseline ADLs and
IADLs. We will then be able to measure the change after
the students have worked with these disabled persons and
thus have an objective measure of the effectiveness of
our program.
Both the US-based Universities and India based
Universities and NGOs will be sending rotating groups of
students to train and learn with our Rehabilitationist
students. Our program goals are:
1. Collect baseline data on number and type of
disability
2. Train rehabilitationist students to be community
rehabilitationists
3. Train parents and care providers to work with
their children
4. Train and work with local resources to build
adaptive equipment
5. Share all training programs and resources with
other programs in South Asia and America
6. Build awareness in the local government about
disability and the need for trained personnel
Primary Care Clinic:
Sangha is working directly with the Director of
Health Services (DHS), Dr. Sadasivan, to begin a Primary
Care Clinic. This clinic will be housed at our Institute
and will be aimed at Women’s Health Care. By focusing on
women, we will be able to elevate the care of the whole
family.
Initially, three Gynecologists working for the DHS
will rotate through our clinic twice a week. Sangha will
provide the medical equipment and the medications. These
medications will be consistent with the local medical
environment to prevent resistance and improve
compliance.
Telemedicine will be used for two distinct purposes:
1. Increase capacity for the local physicians by
providing continuing medical education. This will be
provided both by U.S.based physicians
and India based organizations such as CMC-Vellore and
Artemis
Health Sciences in Gurgaon.
2. Live remote sessions with the local women and
different health care practitioners like social work,
public health, nursing, etc. to promote individual and
community health knowledge. These sessions must be
interactive live sessions to promote exchange of
knowledge.
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